

“Progeria is just a part of who I am.”
Progeria is a rare, fatal genetic condition that causes accelerated aging in children; its young victims rarely live past 13. This moving documentary explores the remarkable world of Sam Berns and the relentless pursuit of a treatment and cure by his parents (both doctors) to save their son from the disease.
Director
Director
Status
Released
Original Language
EN

Four young Americans who've each suffered a Traumatic Brain Injury emerge from their comas at a New Jersey medical facility. Their eyes may be open, but now the real challenge for each of the patients, their families, their doctors and their therapists begins. Brain healing isn't predictable, we're told, and certainly is not guaranteed. So with each 'major' step forward that is observed (opening one's eyes, bending a thumb upon command, vocalizing a word, answering a question correctly) comes a sense of jubilant relief and hope from the families of these patients, but as we soon see, the more a patient progresses, the more difficult things can be for all involved. Moments of faith & hope contrast with disappointments & frustrations, moments of confidence with moments of doubt. It's difficult to watch, and unimaginable to have to ever live through.

Self
Making of documentary surrounding the production of ‘Anora’